GIPPCC is a coalition of hospital systems, hospices, families, and supporting organizations dedicated to optimizing the quality of life for every child in Illinois living with chronic, complex, and/or life-threatening illness, their families, and the teams that care for them.
“This community-academic partnership has guided strategic vision, instructed the group on how to use data to inform project design and evaluation, and given us access to organizations across the spectrum of care,” says James.
Established in 2008, the Alliance for Research in Chicagoland Communities supports authentic community-academic research partnerships between Chicagoland communities and Northwestern University to improve the health and equity within those communities. ARCC advocates for a collaborative approach to research that honors, is driven by, and shares power with communities, as local, cultural, and lived experience experts. The program is a collaborative effort supported by the Northwestern University Clinical & Translational Sciences (NUCATS) Institute and Northwestern’s Institute for Public Health & Medicine. The seed grant program is a partnership between ARCC, NUCATS, and Northwestern Memorial Hospital.
Partnership Development Seed Grants Awarded
ARCC also recently awarded eight Partnership Development Seed Grants, which support newly developing partnerships in relationship building, creation of partnership structures, exploration of shared areas of interest, and research capacity development.
“I am extremely excited to explore potential research collaborations with Northwestern,” says Mary Roberson, founder and executive director of the Northern Illinois Recovery Community Organization, a nonprofit dedicated to promoting addiction recovery principles for individuals and families. “There is such a limited perspective on what recovery means across multiple spectrums of society, and my hope is that this research collaboration can increase our knowledge through data.”
This year’s Partnership Development Seed Grants were awarded to:
- Engaging recovery communities of color: A partnership promoting health equity through addressing co-morbidity disparities — Mary Roberson, Northern Illinois Recovery Community Organization, and Maryann Mason, PhD, Emergency Medicine
- Partnership to explore and address equitable access to Big Marsh Park — Paul Fitzgerald, Friends of Big Marsh, and Adam Becker, PhD, MPH, Pediatrics
- Mind Wellness Compass Program: Understanding mental health stigma and increasing access to mental health services among African Americans and Black immigrants in Chicago — Nancy Asirifi-Otchere, United African Organization, and Aderonke Bamgbose Pederson, MD, Psychiatry and Behavioral Science
- Filling the gaps of institutional and communal sexual health resources and services in Chicago — Angela Townsend, Sexpectations Chicago, and Claire Coyne, PhD, Psychiatry and Behavioral Sciences
- Technology-enabled prevention service for at-risk youth: Community-academic partnership and advisory board — Robert Simmons, Oak Park Public Library, and Ashley Knapp, PhD, Psychiatry and Behavioral Sciences
- Building a community-research partnership to implement an ethically sound APOL1 genetic testing program for African American living donors — Jacqueline Burgess-Bishop, National Kidney Foundation of Illinois, and Elisa Gordon, Surgery
- Cultivating PEAs: A partnership to develop positive emotion ambassadors in violence prevention programs on the South and West Sides of Chicago — Soren Larsen-Ravenfeather, READI Chicago (Rapid Employment & Development Initiative), and Elizabeth Addington, Medical Social Sciences
- Language and culture as barriers and opportunities to improving the health of refugee women — Suzanne Akhras Sahloul, Syrian Community Network, and Melissa Simon, Obstetrics and Gynecology
“These types of awards are amazingly helpful, and we are excited to explore the many opportunities involving research that will help us better understand how to support the communities we work with,” says Townsend, who co-founded Sexpectations in 2018 to bridge the gaps in sexual education that youth receive in school. “I am personally very grateful to have received this award. It is certainly pushing Sexpectations in the right direction to learn, grow, and share what we know with our academic partners.”
During 13 rounds of seed grant funding, ARCC has distributed more than $1 million to more than 80 community-academic partnerships. These funded partnerships have led to increased community and academic capacity for engagement and research, new health discoveries and policy changes, more than $18 million in subsequent grant funding, and more than 40 peer-reviewed publications. The Request for Applications for ARCC 2021 Seed Grants can be viewed here.
Written by Roger Anderson