ARCC Co-director Jen Brown Appointed to National Research Institute’s Advisory Panel
Alliance for Research in Chicagoland Communities Co-Director and Co-Founder Jen Brown, MPH, has been appointed by the Patient-Centered Outcomes Research Institute (PCORI) as a member of its Advisory Panel on Patient Engagement.
Brown joins other members of the panel in applying her experience and expertise to helping PCORI refine and prioritize the research it funds. She will also ensure that the research PCORI supports centers on the outcomes that matter to patients and other healthcare decision makers. PCORI is an independent, nonprofit organization authorized by Congress to fund research that will provide patients, their caregivers and clinicians with the evidence-based information needed to make better-informed healthcare decisions.
"It's an incredible honor to be appointed to the PCORI Advisory Panel on Patient Engagement. I'm excited to join with the other amazing panel members and staff to advance meaningful patient and community leadership of those that have been historically excluded in the research enterprise,” says Brown, a member of the Northwestern University Clinical and Translational Sciences Institute. “I have been continually impressed by PCORI's actions to center community expertise and lived experience not only in the research projects and partnerships they fund, but also in their own governance, merit, and peer review decision-making processes and structures."
Brown was selected for the three-year appointment because of her experience, expertise, and ability to contribute to the panel’s mission. Panel members represent a broad range of healthcare stakeholder groups and perspectives, including patients, family caregivers, clinicians, drug and device makers, and researchers, among others.
Established in 2010 as part of the Affordable Care Act, the Patient Centered Outcomes Research Institute (PCORI) funds studies that can help people make informed healthcare decisions, and improves healthcare delivery and outcomes, by producing and promoting high-integrity, evidence-based information that comes from research guided by patients, caregivers, and the broader healthcare community.
PCORI's Advisory Panel on Patient Engagement is instrumental in helping PCORI to ensure the highest patient engagement standards and a culture of patient-centeredness in all aspects of their work. The panel helps PCORI to refine and prioritize research questions, provide needed scientific and technical expertise, offer input on other issues relevant to our mission, and help us model full and meaningful patient and stakeholder engagement efforts. Hyperlink to
PCORI is currently considering developing a new funding initiative to advance the science of patient & stakeholder engagement, addressing critical research gaps in making engagement more effective & widespread throughout the research process. Learn more.
ARCC works to further understanding of racism and bias in research and community engagement and supports community-academic partnerships to address racial equity issues in research and the partnerships themselves. ARCC is a program of the Center for Community Health, in Northwestern University’s Feinberg School of Medicine serving the Institute for Public Health and Medicine and the NUCATS Institute.